The goal of this study is to improve the way we measure outcomes in ALS trials, allowing for future research to be conducted more efficiently. If this study is successful, it may allow patients to participate in future research trials even if they live far from where the trial is being conducted. Please note—the ALS AT HOME study is NOT a treatment trial; if you take part, you will take measurements at home and electronically send them to the research team.
ALS AT HOME is funded by ALS Finding a Cure®.
If you have any concerns about the study, you can visit www.clinicaltrials.gov and enter trial number NCT03016897 in the search bar, or contact the St Joseph’s Hospital and Medical Center Institutional Review Board for Human Research by phone at (602) 406-3195 or write to: IRB Coordinator, Department of Research Administration, St. Joseph’s Hospital & Medical Center, 350 W. Thomas Rd., Ste. 400, Phoenix, AZ 85013.